For Friends and Family
Supporting someone with epilepsy is challenging. Sometimes the goal has to be to “just get through the day.” But once in awhile you should step back and make sure that you have the best plan, with the help you need and deserve.
If you are leading the epilepsy support team, you may want to ask people to take on “buddy” roles. For example, if your loved one likes to garden or do other outdoor activities near his or her home, ask a neighbor to check in. Don’t take it all on yourself. Have a schedule so that someone stops by—to help or just to visit—every once in a while.
Epilepsy Treatment
When looking for epilepsy treatment, everyone’s goal is the same for loved ones: maximum seizure control. The best for them. The best that they can get. But there are several factors to consider.
According to national guidelines, epilepsy treatment strategies should be specifically designed based on:
- Seizure type
- Epilepsy type
- Other health conditions and medicines
- Lifestyle and preferences, including the lifestyle and preferences of the family and caregivers
You are important in this process. Epilepsy treatment decisions are made by a doctor, but you and your loved one should share in the process of deciding. Ask about the benefits and possible side effects of epilepsy medicines or other treatments. Think about what works best for everyone.
Less than half of all people with epilepsy respond to the first medicine they try, and a third still don’t find control after 3 medicines. It can be frustrating. There are many epilepsy medicines and combinations of medicines to try. Medicines like Vimpat are specifically designed to work with other epilepsy medicines. (In fact, Vimpat can be used with any of the common epilepsy medicines.)
Avoid "Caregiver Burnout"
You can’t give support if you don’t take care of yourself. It can be easy to forget about your own needs when you’re caring for someone else. To be the best caregiver possible, you need to be physically and emotionally well yourself.
- Let others help—and be direct. Assign specific tasks to others, like driving your loved one to shop for groceries or run errands.
- Join a support group for family members. A local chapter of the Epilepsy Foundation may offer support groups.
- Take time for you. If it’s possible, schedule another friend or relative to spend time with your loved one each week to give you a break.
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