Manage Your Support System

The people in your life try to understand what it is like to have epilepsy, but they can’t. They may be eager to help and not know what you want or need. You could wait for them to figure it out, or you could take on the role of head of your own epilepsy support team and move toward seizure control.

Driving

Whether or not you drive is up to you, your neurologist, and the rules in your state. A lot depends on the type of seizures you have and how long you have been seizure-free. Finding a seizure treatment plan that will give you seizure control may allow you to get back on the road. In the meantime, think about:

  • Setting up a carpool and buying the gas instead of sharing the driving.
  • Looking into community resources for public transit; in some cases, you may be eligible for paratransit services.
  • Ask friends and family to take you to the grocery store to pick up certain items for you every week.

Safety Setup

You may need some help setting up your house for maximum safety and freedom. Have family, friends, neighbors, or professionals help you. Tell them what you need and make sure they do it correctly.

Buddies and Visitors

If someone in your life wants to check in once in a while, tell them what works best for you. You may also want to assign people to "buddy" roles. Buddies can help at work and at home, as well. If you like to garden or do other outdoor activities near your home, find a neighbor to check in with.

Your Medicines

The most important part of treating epilepsy is to remember to take your medicines. Keep a supply of your epilepsy medicines on hand and have a backup plan in case you run out. Is there a local pharmacy that can deliver? Is there someone you can call to help you get what you need? You might also want someone to help you remember to take your medicines as directed—or use another reminder system, like an alarm on your watch or cell phone.

Meet Michele B., adding Vimpat since 2006

Epilepsy Independence Can Be Possible

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you get there.